Resources Available from AOTA
Consumer Tip Sheets: Caring for the Adult's Caregiver
This handout discusses how occupational therapy practitioners can help caregivers of adults. It discusses strategies to help promote well-being in the caregiver, encourages recognition of the caregiver's needs, and provides information on supportive services.
Articles in OT Practice
Brachtesende, A. (March 22, 2004). Helping Caregivers Cope. OT Practice.
Articles in the American Journal of Occupational Therapy
1. Hasselkus, B.R. & Murray, B.J. (2007). Everyday occupation, well-being, and identity: The experience of well-being in families with dementia. American Journal of Occupational Therapy, 61(1), 9-20.
The purpose of this study was to gain understanding of the nature of the daily occupations of caregivers for family members with dementia as related to the caregivers' perceptions of well-being. Qualitative telephone interviews, focused on the experience of caregiving, were conducted with 33 caregiver-respondents; the data were transcribed and analyzed using a phenomenological approach. Everyday occupation emerged as a phenomenon that was central to the caregivers' ways of evaluating and monitoring well-being in the care receivers and themselves. Further, occupational engagement served to help mitigate the potential biographical disruption of the dementia caregiving experience. The implications for occupational therapy personnel are convincing: Everyday occupation holds promise for contributing to the relative well-being of both caregivers and care receivers and for facilitating continuity of relationships and identity for the caregiver.
2. Dooley, N.R. & Hinojosa, J. (2004). Improving quality of life for persons with Alzheimer’s disease and their family caregivers: A brief occupational therapy intervention. American Journal of Occupational Therapy, 58 (5), 561-569.
OBJECTIVE: This study examined the extent to which adherence to occupational therapy recommendations would increase the quality of life of persons with Alzheimer's disease living in the community and decrease the burden felt by family members caring for them.
METHOD: Using a pretest-post test control group design, the Assessment of Instrumental Function (AIF) was administered to two groups of persons with Alzheimer's disease in their own homes (n = 40). Caregivers completed measures of their feelings of burden and the quality of life, including level of function of the persons with Alzheimer's disease.
RESULTS: A significant (MANCOVA) main effect was obtained for caregiver burden and 3 components of quality of life, positive affect, activity frequency and self-care status, by the treatment group, F(4, 31) = 7.34, p < .001. CONCLUSIONS: Individualized occupational therapy intervention based on the person-environment fit model appears effective for both caregivers and clients. This is especially important in light of a recent directive for more favorable reimbursement for occupational therapy services for persons with dementia.
Other Articles of Interest
Carer Health and Wellbeing Research Report
In partnership with Australian Unity and Deakin University, Carers Australia has released the findings of the largest ever survey into the health and well-being of Australian carers. The special report titled The Wellbeing of Australians: Carer Health and Wellbeing builds on the work of the Australian Unity Wellbeing Index which measures satisfaction with life. Carers have been found to have the lowest well-being of any large group ever recorded by the Index. To view the report, go to Australian Unity Wellbeing Index Survey 17.1 (LINK does not go to content)
Caregiver Assessment Tools
Feinberg, L.F. (2002) State of the Art: Caregiver Assessment in Practice Settings. Family Caregiver Alliance / National Center on Caregiving. - Available at: Family Caregiver Alliance (http://www.caregiver.org/)
Reviews the Best Practice Criteria for Caregiver Assessment Tools, which should include the following Domains:
Functional Level of Care Recipient
Care Tasks and Skills
Financial & Legal Considerations of Caregiving
Confidence & Competence in Caregiving Role
Values & Preferences
Positive Aspects of Caregiving
Caregiver Strain Index
Caregiver Risk Screen (available in English and French)
C.A.R.E. Tool (Caregivers Aspirations, Realities and Expectations) – available in English & French
Caregiver Self Assessment Tool in English and Spanish (American Medical Association)
Multicultural Caregiver Resources
AARP Caregiver Resources
Corcoran, M.A. (2003) ”Practical Skills Training for Family Caregivers,” (The Family Caregiver Alliance)
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